Neftaly Managing Data Sharing in Collaborative Research

and Legal Foundations

• Data Protection Laws: Comply with POPIA (Protection of Personal Information Act) in South Africa and international standards (e.g. GDPR if working with international partners).
• Ethics Approval: Ensure all collaborative projects undergo ethics review by accredited Research Ethics Committees (RECs).
• Informed Consent: Consent forms must clearly state how data will be shared, with whom, and for what purpose.

???? 2. Collaboration Agreements

• Develop Data Sharing Agreements (DSAs) or Memoranda of Understanding (MOUs) that:
  • Define data ownership
  • Specify access rights and responsibilities
  • Outline data usage limitations
  • Include clauses for protection of participants’ privacy

???? 3. Data Anonymization and Confidentiality